Organisations that support families of children with SEND – Page 2

Independent Parental Special Educational Advice (IPSEA)

Offers free and independent legally based information, advice and support to help parents and carers get the right education for children and young people with SEND. Parents can access a general advice line and an online information service.

Advice line: 0800 018 4016 open weekdays
Tribunal line: 0845 602 9579
Website: www.ipsea.org.uk

Foundation for People with Learning Difficulties

Provides information about issues affecting the lives of people with a learning disability. Telephone: 020 7803 1100 for general enquiries or to order FPLD publications.

Email: fpld@fpld.org.uk
Website: www.learningdisabilities.org.uk

Epilepsy Society

Provides a range of services including research, awareness campaigns, information resources and care, for everyone affected by epilepsy in the UK.

Helpline: 01494 601 400 Monday, Tuesday, Thursday and Friday 9am to 4pm and Wednesday 9am to 8pm.
Website: www.epilepsysociety.org.uk

Dyspraxia Foundation

Helps people to understand and cope with Dyspraxia. Offers families information, support groups and local co-ordinators around the country.

Helpline: 01462 454986 Monday to Friday 10am to 5pm
Email: dyspraxia@dyspraxiafoundation.org.uk
Website: www.dyspraxiafoundation.org.uk

Downs Syndrome Association

Provides information and support for people with Down's syndrome, their families and carers, and the professionals who work with them.

Helpline: 0333 1212 300 10am to 4pm Monday to Friday
Email: info@downs-syndrome.org.uk
Website: www.downs-syndrome.org.uk

Contact

A charity committed to ending the poverty, difficulty and isolation experienced by families with disabled children across the UK. Offers support, advice and information to families, whatever their child's disability or health condition.

Helpline: 0808 808 3555 Monday to Friday 9.30am to 5pm
Email: helpline@cafamily.org.uk
Website: www.cafamily.org.uk

Coram Children’s Legal Centre

A legal charity committed to promoting children's rights in the UK and worldwide. Provides free legal information, advice and representation to children, young people, their families, carers and professionals, as well as training and consultancy on child law and children’s rights.

Child law advice line: 0808 802 0008
Community legal advice education law line: 0845 345 4345
Migrant children’s project advice line: 0207 636 8505
Email: info@coramclc.org.uk (for general enquiries only; legal questions cannot be answered via email).
Website: www.childrenslegalcentre.com

Cystic Fibrosis Trust

A national charity which funds research into the disease and provides information and support for patients and families.

Helpline: 0300 373 1000
Email: helpline@cysticfibrosis.org.uk
Website: www.cysticfibrosis.org.uk

British Dyslexia Association (BDA)

Aims to influence government and other institutions to promote a dyslexia friendly society that enables dyslexic people of all ages to reach their full potential.

Helpline: 0333 405 4567 10am to 1pm and 1.30pm to 4pm Mondays to Friday (closed Wednesday afternoon)
Email: helpline@bdadyslexia.org.uk
Website: www.bdadyslexia.org.uk

Brent Mencap

Brent-based voluntary sector organisation working with, and on behalf of, people of all ages with a learning disability.

Telephone: 020 8451 5278
Email: info@brentmencap.org.uk
Website: www.brentmencap.org.uk

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